Alzheimer’s disease links family with rare gene to Pitt research in compelling book
By Gary Rolstein | Pittsburgh Post Gazette
Mt. Lebanon freelance writer Niki Kapsambelis vividly remembers the life-changing April 2009 day she met seven members of the DeMoe family from North Dakota at the Omni William Penn Hotel in Downtown.
The DeMoes were making one of their annual visits to participate in research at the University of Pittsburgh’s Alzheimer Disease Research Center. The family members are susceptible to a rare genetic version of the disease that makes it 50-50 they will acquire the disease as adults — and worse yet, before the age of 60.